Thursday, 12 September 2024

The forgotten patient

I’m feeling frustrated today with my care at mount sinai and this is unusual as I’ve always felt I’m in the best hands.
It was suggested I do a more fulsome genetics panel this time as last time I was only tested for brca1 and 2. It was initiated in July and was supposed to take 2-3 weeks. I followed up last week to ask about it and it turns out the lab didn’t do it. I’m frustrated that as the patient I’m the one tracking this as it could inform my treatment plan - eg more surgery. Where are my two oncologists and the genetics contact??
it’s now been expedited but it certainly makes my care feel less personal. Like I’m a number and not a h human with a life to get back to. 
I want to know my full treatment plan!!

No comments:

Post a Comment